2nd Radiology Report - Compiled Summary 2022

2nd Radiology Report – Compiled Summary 2022

What is the purpose of this Compiled Summary?

Spine and Brain Advocate’s (SBA) goals is to provide comprehensive and detailed 2nd Radiology Reports completed by craniocervical junction disorder – knowledgable Consultant Radiologists, especially when they aren’t able to obtain science-backed craniocervical junction measurements. One of the many challenges patients investigating craniocervical junction disorders face is that the treating physician and radiologist do not suspect a craniocervical junction disorder(s) and therefore do not thoroughly investigate this critical area of the body.

A working hypothesis of Spine and Brain Advocate is that the professional medical community (i.e. physicians and radiologists) does not suspect craniocervical disorders, and believes they are extremely rare; when instead, they are often overlooked, especially with cases that are not apparent in supine, neutral imaging but apparent on dynamic diagnostic imaging.

By reporting on the differences between the patients’ Original Radiology Report compared to the 2nd Opinion Radiology Report by CCI-knowledgable Radiologists as well as examining the details of the 2nd Radiology Reports such as what are the more prelevant kinds of craniocervical junction (CCJ) disorders, CCJ measurements, and combinations of types of CCI and how often do elongated styloid processes (which can often be a differential diagnosis i.e. display the same symptoms as CCI) show in 2nd Opinion Radiology Reports.

Note: This is a first run at these reports and therefore we anticipate changes and improvements to be made in the future as we gather more data.

Last but not least, part of Spine and Brain Advocate’s Mission is to champion change, leading awareness and advocating change at all levels. It is SBA’s believe that in order to advocate changes on an individual level as well as large scale (i.e. healthcare systems), data is needed to tell that patient’s story. The 2nd Radiology Report and the Patient Experience Report are two key reports that once there is enough substantial data, will be used to lobby and advocate for healthcare changes on country and local levels, and perhaps to all the Radiologists, Primary Care Physicians, Neurosurgeons, Neurologists and Orthopaedic Physicians & Surgeons around the world.

What data was used for the 2nd Radiology Report – Compiled Summary?

Spine and Brain compiled Original Radiology Report and 2nd Opinion Radiology Report data ending December 31, 2022 from 2nd Radiology Opinion Report clients in an excel spreadsheet and completed an initial data cleanse which included replacing patient names with initials and removing personal information such as personal addresses.

Who completed the data analysis and report?

Spine and Brain Advocate interviewed several candidates with PhD Bioinformatics validated credentials and statistical expertise, and selected the most qualified candidates to complete the analysis and report. One selected PhD Bioinformatics consultant was from Germany and the other from France.

What is the result of CCI finding on Original Radiology Report compared to 2nd Opinion Report?

Original Radiology Reports:

12% of the participants had positive Craniocervical Instability (CCI) findings
32% of the participants had a negative CCI finding
43% CCI information was not available / not investigated
11% Did not submit an Original Radiology Report

2nd Opinion Radiology Reports, completed by Spine and Brain Advocate Consultant Radiologists:

70% of the participants had positive Craniocervical Instability (CCI) findings
30% of the participants had a negative CCI findings

…. continue to read the full report see the images below.

Majority of participants were from USA, followed by Australia, Sweden, Canada and UK.

3/4 of the participants were female and 1/4 male.

The participants were of a wide range of age, from 10 to 70 years old.

35% of participants were not sure what triggered their illness onset whereas roughly 40% had some form of physical trauma) and 15% reported a virus triggered the onset of their illness.

A summary of participants Original Radiology Reports included: 12% Positive Craniocervical Instability (CCI) findings, 32% had a negative CCI findings, 43% CCI information was not available / investigated and 11% of the participants did not submit an Original Report.

2nd Opinion Radiology Reports, completed by Spine and Brain Advocate Consultant Radiologists: 70% Positive Craniocervical Instability (CCI) findings and 30% had a negative CCI findings.

On the 2nd Opinion Radiology Reports, a predominant 50% of participants had horizontal CCI.

Horizontal CCI and vertical CCI at the same time are observed in 17% of the participants.

For definitions on pages 5, 6 and 7, check SBA’s CCI Learning Center in the menu. Please note that the website and CCI Learning Center are the process of being updated and also, as new relevant studies or information become available, the site will be updated. Also note, that the website is updated on a volunteer basis and therefore may take some time, thanks in-advance for your patience.

Participants 2nd Radiology Report Summary of Findings: 49% disc bulges, 21% degenerative facets, 8% atlanto-occiptial degenerative changes and spinal canal or lateral narrowing 22%. Elongated Styloid Processes 19%. Retroflexed Dens 14%. Chiari Malformation 1%. Sub-axial Cervical Spine Instability 21%. Craniocervical Junction Measurements: Grabb-Oakes Line (GOL) 28% + borderline 6%; Clivo-axial angle (CXA) 28% – borderline 3%. Harris Measurements: Basion-dens interval (BDI) 14%, Basion-axial Interval (BAI) 7%, translational-BDI 10% and translational-BAI 14%.

SBA 2nd Radiology Opinion Report Compiled Summary 2022 — Other diagnosis of the participants included: 43% Ehlers-danlos syndrome/Hypermobility Disorder; 6% Chiari Malformation, 35% Arthritis, 22% ME / CFS (note, graph and descriptions should read CFS and not CSF – corrections to be made shortly), 9% Fibromyalgia and 70% Craniocervical Instability (CCI).