CCJ Patient Experience Survey

Complete the CCJ Patient Experience Survey if you have a Craniocervical Junction disorder diagnosis, are investigating or haven’t been able to. For more information on what CCJ is, click here to find out or here for a medical explanation.

Complete this survey, perhaps with the help of a caregiver, friend or family member. It’s a comprehensive survey. There are over 50 questions. It should take approximately 30 minutes to complete the full survey.

The goal of this survey is to gather as much information as possible about individuals diagnostic and treatment journey and roll them up into statistics and key messages to tell key stakeholders (such as government, medical schools, researchers, healthcare providers) our collective story in an attempt to educate, change and improve Healthcare.


  • Make sure you have your medical records nearby for easy referencing while completing the survey.
  • It may be helpful if you are able to solicit the help of a family member, friend or caregiver to complete this survey to minimize any strain on you.
  • Review the question and all possible answers before hitting any button. Once an answer is selected, you may not be able to go back to change your answer.


Spine & Brain Advocate