CCJ Patient Experience Survey

spine & brain advocate

The goal of the CCJ Patient Experience Survey

The goal of this survey is to gather as much information as possible about individuals diagnostic and treatment journey and roll them up into statistics and key messages to tell key stakeholders (such as government, medical schools, researchers, healthcare providers) our collective story in an attempt to educate, change and improve Healthcare for spine and brain patients.

Who should complete the survey? 

If you have a craniocervical junction disorder diagnosis, are currently investigating or haven’t been able to but suspect a brain/spine disorder, complete the survey. 

If you completed the survey but have up-to-date information, you can re-do the survey and your original survey information will be deleted.  

If you complete the survey but change your mind and do not want to participate, contact us with your information and we’ll remove it from the database. 

Approximate Time Needed 

Complete this survey, perhaps with the help of a caregiver, friend or family member. It’s a comprehensive survey. There are over 60 questions. It should take approximately 30 minutes to complete the full survey.


  • Make sure you have your medical records nearby for easy referencing while completing the survey.
  • It may be helpful if you are able to solicit the help of a family member, friend or caregiver to complete this survey to minimize any strain on you.
  • Review the question and all possible answers before hitting any button. Once an answer is selected, you may not be able to go back to change your answer.

Click here to see the latest CCJ Patient Survey Results.