Welcome to the Spine and Brain Advocate, a not-for-profit organization based in Canada dedicated to serving patients worldwide.
Our mission is to empower individuals facing chronic pain, fatigue, and neurological symptoms with comprehensive medical information, enabling them to advocate for themselves and access the best available treatment. Our primary goals include the following:
1. Facilitating Access to 2nd Opinion Radiology Reports by certified Radiologists who specialize in Craniocervical Instability reporting and its common comorbidities
We understand the importance of informed decision-making. Our aim is to guide those suffering towards obtaining detailed Radiology Opinion Reports by qualified Radiologists. This ensures a thorough evaluation of their condition and provides a foundation for an effective treatment plan, ultimately saving time, effort, and money.
2. Raising Awareness and Advocating for Healthcare Changes
We are committed to shedding light on craniocervical instability (CCI) and its associated co-morbidities. Through initiatives like the CCJ Patient Experience Survey, we aim to collect valuable information that can contribute to advocating for healthcare changes globally. Our focus is on building a compelling case that demands attention and action.
3. Serving the Global Brain and Spinal Instability Patient Community
Our outreach extends to the worldwide brain and spinal instability patient community and their families. We strive to be a supportive resource, fostering connections and providing valuable information to enhance the lives of those affected.
Our Mission: Patient Knowledge and Empowerment
At the Heart of Our Mission Lies a Working Hypothesis
– A significant subset of individuals diagnosed with ME/CFS, Fibromyalgia, or those with congenital conditions, head and neck trauma, or infections may have craniocervical junction disorders.
– Unfortunately, a majority of healthcare professionals often overlook or underdiagnose spinal instability caused by ligament laxity.
– Craniocervical junction disorders are treatable, and a comprehensive, knowledgeable healthcare team can significantly improve outcomes.
Addressing the Scope of the Issue
More research is needed to identify if patients currently diagnosed with ME/CFS, Fibromyalgia, Whiplash-associated disorder (WAD), Chronic Concussion Syndrome, and Ehlers Danlos Syndrome and craniocervical junction disorders, including craniocervical instability.
Call to Action
Our organization believes in the potential for positive change. Together, step by step, we can create a ripple effect that transforms the landscape for the underserved patient population dealing with craniocervical instability. Join us in our mission for a better, more informed, and empowered future.